Dr Fred Kaplan, Burt Nussbaum (specialisttandläkare) Annsofie, Zvi Grünwald (narkosläkare) Dr Eileen Shore
FOP Specialister – Kontakt – FOP Sverige
Vid medicinska frågor om FOP och vid akutsituation, vänligen kontakta våra specialister;
Frederick Kaplan, MD
(office) +1 (215) 349-8726/8727
(home) +1 (215) 545-0758
(fax) +1 215-349-5928
mail
Isaac and Rose Nassau Professor of Orthopaedic Molecular Medicine Director, Center for Research in FOP & Related Disorders. The University of Pennsylvania School of Medicine
Hospital of The University of Pennsylvania
Department of Orthopaedic Surgery
Silverstein Pavilion – Second Floor
3400 Spruce Street Philadelphia, PA 19104, USA
Robert Pignolo, M.D., Ph.D.
(office) +1 (215) 349-8726/8727
(pager) +1 (215) 308-9643
(fax) +1 215-349-5648
mail
Assistant Professor
Department of Orthopaedic Research
University of Pennsylvania School of Medicine
Ian Cali Clinical & Research Scholar at the Center for FOP and Related Disorders
422 Stemmler Hall
36th & Hamilton Walk
Philadelphia, PA 19104
Frågor gällande tandvård för FOP patienter, vänligen kontakta följande personer:
Allen Wong, D.D.S., DABSCD
(cell) +1 415-720-4609
(emergency beeper) +1 888-241-3694
mail
Hospital Dentistry Program, Director
University of the Pacific
Arthur A. Dugoni School of Dentistry
2155 Webster Street
San Francisco, CA 94115
Burton L. Nussabum, D.D.S.
Office +1 (856) 424-5955
Fax +1 (856) 424-8382
mail hemsida
Dental Care
Dentistry for Special People, P.A.
1910 Marlton Pike E Ste 9
Cherry Hill, NJ 08003-2123
Frågor gällande anestesi (narkos) för FOP patienter vänligen kontakta;
Zvi Grunwald, M.D.
(phone) +1 215-955-6161
(Fax) +1 215-923-5507
mail
The James D. Wentzler Professor and Chairman
Department of Anesthesiology
Thomas Jefferson University and Hospitals
111 South 11th Street, Suite G-8490
Philadelphia, PA 19107
Chef på FOP laboratoriet i Philadelphia;
Eileen M. Shore, Ph.D.
(Phone) +1 215-898-2330/2331
(Fax) +1 215-573-2133
mail
Associate Professor
Departments of Orthopaedic Surgery and Genetics
Co-Director, Center for Research in FOP & Related Disorders
Director, FOP Laboratory
The University of Pennsylvania School of Medicine
424 Stemmler Hall, 36th & Hamilton Walk
Philadelphia, PA 19104
På IFOPAs hemsida finner du ett internationellt register över specialister/läkare/vårdpersonal som har patienter med FOP. I första hand rekommenderas att kontakta Dr Kaplan och Dr pignolo, vid tand och käkrelaterade problem kontakta Dr Wong, Dr Nussbaum och vid anestesi Dr Grunwald.
Stöd FOP-drabbade genom bidrag till FOP-forskningen, bankgiro 5823-7140
